I like to think I’m pretty aware of many of the best gluten-free and allergen-free sites on the web. But while researching the internet for information on a blog post I’m working on, I came across a website I hadn’t seen before – www.glutenzap.com.
GlutenZAP is a website and community for those following a gluten-free lifestyle and their goal is to share information with others that they have personally found helpful.
GlutenZAP’s Mission Statement:
We want to achieve health with celiac disease by eliminating as much gluten as possible.
A negative blood test does not mean that you don’t have any gluten in your diet: This article states: “two years after adopting a gluten free diet, about half those people diagnosed with celiac disease continued to have villous atrophy as severe as when they were first diagnosed. Only about one in five of those with severe intestinal damage (villous atrophy) on a gluten free diet had raised (abnormal) blood levels of transglutaminase antibody, meaning that standard blood tests to monitor disease activity were relatively ineffective.”
We believe a possible reason these people might still be suffering villous atrophy is that they may still be eating hidden gluten. Here we share information about which “gluten free” foods may contain enough gluten to make us sick. We find this out by using home testing kits such as EZ-Gluten test strips, Glutentox and Neogen, and by listening to our bodies. Many of us are highly symptomatic gluten canaries.
There are many good other sites for general information about celiac disease. Some of us do not respond well to the gluten free lists given on those sites. This site is for those “super sensitive” celiacs/gluten intolerants, although all are welcome.
By “super sensitive” celiacs/gluten intolerants, we mean those who are sensitive to very low levels of gluten.
And one of the contributers, Stephanie, had this to add about the site:
“I think that it is really terrible that the possible issues with 20 ppm gluten for some of us is kept so quiet. That is partly why GlutenZAP was started and quite a few of us are involved elsewhere to try to raise awareness about this issue. Most of us went on that standard gluten free diet and couldn’t figure out what was going on when we were still experiencing symptoms. Just about everyone around us assured us that our food was completely gluten free and safe. We really need to get the word out for those of us for whom this isn’t true. The goal isn’t to scare people for whom 20 ppm foods are safe, but to prevent suffering for people for whom they are not. My son and I suffered a lot for many months before I figured it out.”
GlutenZAP Community Forums
“www.glutenzap.com and read through the site and the forums and discover for yourself foods you may be ingesting and products you may be using that could contain hidden sources of gluten so you can avoid them and begin to improve your health and well being overall.